The current support groups vary in their specific objectives, average age groups and memberships, but they do share a common goal; to provide alopecia areata sufferers, their families and friends a warm, comfortable environment to share experiences. Meetings are held regularly and ideas are shared amongst the groups. Not all meetings are listed on our calendar so please contact the support group in your region for meeting schedules.
People who have Alopecia Areata and their family members often experience a variety of emotions:
* Feeling alone, withdrawn, and isolated
* Loss and grief
* Fear that others may find out you have the disease
* Scared that others may find out that you wear a wig
* Sadness and depression
* Guilt or self-blame that you somehow brought the disease on yourself
* Guilt related to how the disease is affecting family members and loved ones
* Helpless in regard to searching for answers or cure (going to extremes)
* For parents, guilt that they may have genetically contributed to their child’s disease
* For siblings and other family members, shame and hurt because the disease has also affected their lives
AAAF is seeking out support groups throughout Australia. If you or someone you know operates a support group we would like to hear about it. Drop us a line at email@example.com.
Closed Facebook Groups:
These closed Facebook Groups are private, state-based Support Groups. Only people living with Alopecia Areata and families supporting a loved one with the condition are invited to join, so that we maintain a safe and supportive environment. These are a great place to ask questions, share stories and connect with other people with Alopecia Areata in your area. We ask that you only ask to join one group for the state that you live in.